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Marys Story 2010

Our daughter, Mary, was diagnosed with Xeroderma Pigmentosum in 1997 at the age of four and a half. By the time Mary was three years old she had suffered 4 or 5 peeling sunburns. We tried to be dili...
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60 Minutes

Recently 60 Minutes aired a story on XP. You can find it on their website. 60 Minutes

About XP

Xeroderma Pigmentosum is a rare genetic disease that prevents the patients cells from repairing DNA after exposure to ultraviolet radiation (UVR).

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Past Blogs

25/06/2010
26/06/2010